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My Child is Ill

     


NOTE FROM PAT: I receive the following requests about the same time so I'm not sure if the same person sent these in or not. If not, will the one who wrote in "cognitive difficulties" be more specific as what is causing the problem? There are so many illnesses, syndromes, learning disabilities, reactions to medications, surgery, and even emotional causes that could account for cognitive problems. Thank you.

A topic I would like discussed on this page is: ADHD and ADD

A topic I would like discussed on this page is: cognitive disabilites.

I have never raised an ADHD child so I feel incompetent to write about it. I gathered this information off the internet. If any of you live with ADHD or have a child with ADHD please write us and tell us your story, ways to help, etc. Thank you.

 
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ADHD used to be known as attention deficit disorder, or ADD. In 1994, it was renamed ADHD, attention deficit hyperactivity disorder and broken down into three subtypes, each with its own pattern of behaviors. The official diagnosis of ADHD includes the three major symptoms (inattentiveness, hyperactivity and impulsiveness). The most recent version of the handbook for mental health professionals states that people with ADHD may have any or all of the major symptoms


1. an inattentive type
, with signs that include:

  • inability to pay attention to details or a tendency to make careless errors in schoolwork or other activities
  • difficulty with sustained attention in tasks or play activities
  • apparent listening problems
  • difficulty following instructions
  • problems with organization
  • avoidance or dislike of tasks that require mental effort
  • tendency to lose things like toys, notebooks, or homework
  • distractibility
  • forgetfulness in daily activities

2. a hyperactive-impulsive type, with signs that include:

  • fidgeting or squirming
  • difficulty remaining seated
  • excessive running or climbing
  • difficulty playing quietly
  • always seeming to be "on the go"
  • excessive talking
  • blurting out answers before hearing the full question
  • difficulty waiting for a turn or in line
  • problems with interrupting or intruding

3. a combined type, which involves a combination of the other two types and is the most common

Although it can often be challenging to raise kids with ADHD, it's important to remember they aren't "bad," "acting out," or being difficult on purpose. And children who are diagnosed with ADHD have difficulty controlling their behavior without medication or behavioral therapy.

How Is It Diagnosed?

Most cases of ADHD are treated by primary care doctors. Because there's no test that can determine the presence of ADHD, a diagnosis depends on a complete evaluation. When the diagnosis is in doubt, or if there are other concerns, such as Tourette syndrome, a learning disability, or depression, a child may be referred to a neurologist, psychologist, or psychiatrist. Ultimately, though, the primary care doctor gathers the information, makes the diagnosis, and starts treatment.

To be considered for a diagnosis of ADHD:

  • a child must display behaviors from one of the three subtypes before age 7
  • these behaviors must be more severe than in other kids the same age
  • the behaviors must last for at least 6 months
  • the behaviors must occur in and negatively affect at least two areas of a child's life (such as school, home, day-care settings, or friendships)

www.kidshealth.org

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Children who have ADHD may be difficult to parent. They may have trouble understanding directions. Children who are in a constant state of activity can be challenging for adults. You may need to change your home life a bit to help your child. Here are some things you can do to help:

  • Make a schedule. Set specific times for waking up, eating, playing, doing homework, doing chores, watching TV or playing video games, and going to bed. Post the schedule where your child will always see it. Explain any changes to the routine in advance.
  • Make simple house rules. It's important to explain what will happen when the rules are obeyed and when they are broken. Write down the rules and the results of not following them.
  • Make sure your directions are understood. Get your child's attention and look directly into his or her eyes. Then tell your child in a clear, calm voice specifically what you want. Keep directions simple and short. Ask your child to repeat the directions back to you.
  • Reward good behavior. Congratulate your child when he or she completes each step of a task.
  • Make sure your child is supervised all the time. Because they are impulsive, children who have ADHD may need more adult supervision than other children their age.
  • Watch your child around his or her friends. It's sometimes hard for children who have ADHD to learn social skills. Reward good play behaviors.
  • Set a homework routine. Pick a regular place for doing homework, away from distractions such as other people, TV and video games. Break homework time into small parts and have breaks.
  • Focus on effort, not grades. Reward your child when he or she tries to finish school work, not just for good grades. You can give extra rewards for earning better grades.
  • Talk with your child's teachers. Find out how your child is doing at school--in class, at playtime, at lunchtime. Ask for daily or weekly progress notes from the teacher.

                                                                               from http://familydoctor.org



ARCHIVES

2006/2007

  • Laura Whitney Was My Friend
  • The Heartache of Miscarriage
  • My Thoughts for Ben and Alex (poem)
  • A Special Prayer for an Unborn Child
  • When You Visit (poem)
  • The Mother Who Would Not Give Up
  • The Race (poem)
  • Melissa's Story
  • How to Care for a Seriously Ill Child
  • Kid-friendly websites to explain illness

2008

  • Healthy Children Often Take Back Seat
  • 10 Things Every Child with Autism Wishes You Knew
  • My Autistic Son (poem)
  • Double Blind:Too Similar and Yet Too Different (poem)



       Below are some tips for helping to build relationships between kids with ADHD and grandparents:

  • Provide grandparents with information on the child’s disability through magazine articles, books or links to sites like Psych Central. Learning about a disability helps other family members learn how to relate to the child as an individual.
  • Provide information that explains behavior, if the child’s disability makes him or her act out. It is often easier for grandparents to understand and accept a child’s behavior if they read explanations from an authority. This also keeps the parent from having to explain or be put on the defensive.
  • Suggest ways for the child to interact with grandparents. Identify mutually enjoyable activities. If you know that certain activities are difficult for your child, steer away from them. For example, if your child does better one-on-one in a quieter setting, pick a simple activity like working on a puzzle together in a quiet room.
  • Try to gauge the comfort zone of both the child and the grandparent. Offer to stay in the room if either seems nervous about being left alone together, or stay nearby where you can hear if difficulties arise. Assure the grandparents that you know the child needs a relationship with them and you want to help foster it.
  • Finally, step out of the way as the relationship progresses. As the child and the grandparent become more comfortable with each other, allow the relationship to happen, accepting that they will have to negotiate glitches on their own. No relationship is without its difficulties, and as parents, we can’t always provide perfect situations. When you step back, do it with the acknowledgement that you’ve done your best.

                                      http://psychcentral.com

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If you are of the mindset ADHD is only an excuse for a lenient parent with a bad child and a good spanking will cure it, then I suggest you get on the internet and do a search on ADHD. Read some stories from parents and from adults with this disorder. Yes, it is possible for a wrong diagnosis, as it is possible for a wrong diagnosis of most any disease, but just because a few may be misdiagnosed is no reason to throw out the reality of ADHD. The loneliness and pressures that accompany living with ADHD is enough to deal with, they don't need your doubts.

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WHAT WE WISH EVERYONE KNEW ABOUT HAVING AN ILL CHILD

  • It is okay to ask how the child is doing.  It is okay to cry.  It is okay to get frustrated, feel like giving up, but you can't.  Everyone gets tired and wishes it would go away.  But it does not.  It is okay to tell your child you love them.
  • I recently saw a show on television regarding autism.  They were talking about when anyone is diagnosed with cancer, how everyone is kind and sympathetic and offering all the help in the world.  However, if your child is diagnosed with autism, people tend to run the other way as quickly as they can.  This is so hurtful and harmful to the family.  I wish people would try and understand more about the many facets of autism.  The guests on the show (parents of autistic children) suggested that if you know someone with an autistic child, you offer to babysit for them.  If you do not have a child with autism yourself, you do not understand why this is so important to the parents/caregivers.  They are so correct in their suggestion.  Babysit for an hour or two, maybe overnight sometime.  Give the parents a chance for some well deserved respite.  You will ALL benefit from this experience.  For those of you who do not have to deal with this problem, you do not know how luc!
     ky you are.


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